Hi Kylie, its great to hear from you. How are things going,hows your progression? I have gotten a little slower myself, my left hand and arm which was always good is starting to let me down. My eldest girls started playschool so thats 1 thing ticked off my list. My media campaign finished up, i'm glad in a way as it took alot of energy. Have you heard of any updates connected to our condition? I was on a trial drug for a while but it didnt work out.