Thank You, Thank You....a hundred x's Thank You. I am so sorry that you had to be a trail-blazer through this horrid terrain but thank you once again, for mapping it out for those that will follow . My Jim seems to be rapidly progressing. His diagnosis was in January. He already has his feeding tube and his speech, swallowing, coughing, clearing his throat, hands becoming immobile, communication becoming more difficult by the day. But he too remains upright and able to walk. I am reading all your sources and every thing makes perfect sense to me now. This has been going on for quite some time now...Longer than the ALS symptoms. So which comes 1st? The FTD or the ALS? And if the FTD symptoms emerged 1st, I will continue to link to your resources to try and figure it out. Our paths seem so similar. My gratitude for you sharing is immense , Pam