You said: "Tell me how you know that it isn't ALS?"
Don't tell me you've lost all access to the dozens of messages I've sent and the dozens of posts people replied to you with. There are all the reasons. Mainly, you've never given us a reason to think you have anything except anxiety.
See your doctors, please. Tell your Internist about the reason why you don't take the medication, so he can give you something better. See the MDA clinic in OKC and tell me how it goes. If you can't wait, see the neurologist who said you don't have ALS and ask him to satisfy you.
We're not doctors here.