Rob, you might have missed these words in the rules: "If you do not fit in one of these categories [PALS or CALS], then you are only a guest here….as a guest, please confine your questions to the DIHALS area."
We have a lot of active members, all of whom have little time, and many of whom must make extraordinary efforts to navigate, read and write. We serve them, first and foremost, with our limited volunteer time. Thus, we made the rules to serve our primary mission to our primary audience. Please respect that.
We found that it was confusing and counterproductive when persons without personal experience of ALS participated in discussions around the board. Our time is limited, and must stay focused. --Mike