I apologize to all of you for not introducing myself properly, although i have known most of you for the last three years. My sister Arjana was diagnosed with ALS in April 2012 and lost her battle in May 2015. She was in the prime of her life. 54, married with two grown children. She was my sister, best friend, the closest person I had. For 3 years, every single day, i visited her. We laughed, cried, watched movies, researched articles, planned weddings (her son’s), prepare scrapbooks, planned bridal shower and made sure our poor 78 yo mother, be part of her life as much as she could. We, as a team managed to give her a "normal" life as normal as she could have, celebrated every minute we were together and arranged that she had a very peaceful death. She got a lot of love and care and she went at peace. She was lucky to have an amazing husband and children who treated her with so much love, compassion and care. I love this forum and will do my best to help others. I HATE ALS