Hi
I read your post and I'm sorry things are so tough for you right now. My mom was also bulbar-onset, she passed in December, 2 years after diagnosis. Like you, I thought it would never end, but of course it does. I could only get thru one day at a time, looking into the future just further exhausted me. I'm glad that you hired some help for yourself. I have 2 brothers also, but my mom only wanted me. I wish you strength, you may hate what you have to do right now, but I don't think you'll regret it.
Trina
I read your post and I'm sorry things are so tough for you right now. My mom was also bulbar-onset, she passed in December, 2 years after diagnosis. Like you, I thought it would never end, but of course it does. I could only get thru one day at a time, looking into the future just further exhausted me. I'm glad that you hired some help for yourself. I have 2 brothers also, but my mom only wanted me. I wish you strength, you may hate what you have to do right now, but I don't think you'll regret it.
Trina