Hi, Beth, I think about you two as well and am sending such good thoughts. I still hope I can help you out some day. I am packing up a few more things to head back up north to be with mom. I think I am still in such denial. Not sure where to turn next, but my analytical and my emotional mind is a bit afraid of hospice...when the first words out of the Hospice Director's mouth are about using morphine... Mom just wants each day to be a good day and she is coming to terms with there no treatments other than what she is doing, but she still talks about fighting and going to other clinics -- so it is very hard to know what and when is the right time. Pulmonologist did not even take her FVC -- she is on BiPAP 23 hours a day, but she is still walking and has use of hands .... Sorry to go on, just not sure I want to post to entire forum yet.