Still in denial ..... This has been incredibly rough on me as I am sure for everyone. Still holding out hope it's something else as I am not getting worse per say. Can't bring myself to go to clinic, not ready to give up...that's what it feels like.
What an unusual case. I'm not personally aware of anyone with a hands-first presentation and clean EMG on the legs. Possibly you nave something else better than total paralysis in your future? So that's a kind of hope, I suppose. Are the fingers paralyzed? How are you typing this?