Hi Elaine,
Hope you are coping well. I am a newly registered member here and noted your comments about back pain.
Can you tell me if you find it difficult to sit upright and are slightly slumped over at times? As this does happen to me from time to time. I was diagnosed in April this year with ALS, and am paralyzed from the hips down. Fortunately my upper limbs still appear to be normal. But this back weakness is something I wonder about.
sandrarud