Hi Nancy,
I'm so sorry for your need to be here, but here we all are. My mom is bulbar-onset, so right now prob not many similarities to your husband. She was diagnosed at the Cleveland Clinic, and then a second opinion from Dr. Lacomis in Oakland. We have not gone back for any clinics because we really didn't see the need. With your husband being younger however, that might be right for you. This is all so new for you and it is very difficult to reach a place of acceptance. I'm glad you found this forum - it has been a great source of support for me this past year. Thanx for reaching out and keep in touch. Remember to take things day by day, that's all I can do most of the time.
Trina
I'm so sorry for your need to be here, but here we all are. My mom is bulbar-onset, so right now prob not many similarities to your husband. She was diagnosed at the Cleveland Clinic, and then a second opinion from Dr. Lacomis in Oakland. We have not gone back for any clinics because we really didn't see the need. With your husband being younger however, that might be right for you. This is all so new for you and it is very difficult to reach a place of acceptance. I'm glad you found this forum - it has been a great source of support for me this past year. Thanx for reaching out and keep in touch. Remember to take things day by day, that's all I can do most of the time.
Trina