Hello designdiva,
I've been reading your posts and I can feel your pain. This is so hard for everyone involved, especially the caregivers. I used to think the PALS had it worse, but I'm not sure about anymore.
Take Barbie's advice and get some help. Not only outside help for him, but also help for yourself. I followed her suggestion and started taking some anti-depressants, and OMG! The difference is incredible, believe me! Do it, and do it soon, you'll be so glad you did, I promise.
Hang tough,
Steve