My heart goes out to you, I was diagnosed this May. My husband is scared to talk at times he fears he will say something that will upset me. I just want to talk....it seem s of some confront to know he is just as scared as I am. I'm 44 a mom, of 4, an RN that has stopped working due to my weakness. I have to allow myself time to grieve I urge you to talk to your hubby, he is just as sad as you. I'm not going to let ALS take every second of my day. You will b in my thoughts.