John has had ALS for two years in June. But, Dr. Lacomis thinks he has had it for a year prior. June a year ago we went on a two cruises!! He was just starting to use a powerchair and took it as it was easier on the trip. At that time, he was able to use a walker. Now, he is unable to walk at all confined to his powerchair and transfers are getting more and more difficult. As I said in my first post, he has a feeding tube, and an AVap to breath along with other breathing helps as far as machines. He spends a lot of the day using them!
John is VA connected. If your husband is a vet, I can give you tons of advice!!! We have recieved all their benefits to date and it is a heaven sent, however slow and loaded with paperwork it is!