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  • Ha Ha!!! It is a by invitation only group. We would have to be FB friends first. We have a lot of members who are all pulling their hair out with frustration.
    Hi, Emma it is tough I know. If you are on Face Book, we have a great Caregivers group there too. To respond to me, just click on my name, and write on my page.
    Hey emma, sorry to hear about your husband. I don't have any advice that you havn't read elseware before. Take advantage of his mobility, take a family vacation or two, just in case you don't get time for three or four. My wife was 37 when she was diagnosed, and we started planning very quickly for our trip to Disney. our Bethany was 6 at the time, and we know we won't be able to do it again. We also have a 2 y/o son Trace. Patty is now in a chair all the time and a hospital bed at night. So again, take advantage of every day that he can be out and about.
    Just reaching out, If you need to talk...
    Gary
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