Hi everyone. I haven't been on here in a while, partially because I just don't want to think about things sometimes and partially because I just don't have anything positive to contribute. And I feel like I should with all the positivity I've received.
I guess my mom and I are doing well. Had a visit from the ALS Assoc last week and we are trying to get into a clinical trial at SLU (St. Louis University). We applied for Medicare and SSD. You know... starting to get things "in order."
It is such a heavy weight to carry around and I tell myself I'm not supposed to worry but that's easier said than done.
On a brighter, we are taking a trip to Hawaii Feb 27. We are both thrilled, neither of us have been there, and it will be a nice escape.
Thank you, everyone, for your support and prayers and thoughts. I will say this, I have been overwhelmed by the amount of support I have received from friends and family. I certainly do not feel alone.