Hi Cubcake, and thanks for your message.. It does me good to read the forum and hear from people whether they be cals or pals..
It's such a devasting disease, robbing all we take for granted bit by bit.
I am doing all the fattening stuff for him to eat with added ceam, butter, full fat milk, cheese etc.
We are using the presricption milkshakes to make his Ready Brek too, he is adding sugar and jam..
The biggest trouble is the drinking, getting it down the wrong way, coughing, choking, reluctant to drink again for a little while. Wont use a straw. His wee output is diminishing, he is damn grouchy cos he cant crap! Appointment with the Gastro people beg of sept. I don't know how to feel anymore, am just in limbo...waiting for some disaster to happen..
Had his couple of pills in dispersible form or liquid so he takes them. Wont take anything to elevate his mood, says whats the point?
Some days now I feel what is the point of me, gets me down some days more than others.