Hi HP, I'm so sorry I didn't get back to you sooner, I meant to look up the names of the docs to send you and then forgot. My doc at Mass General is Dr. David Chad, but I see him at the ALS Clinic at UMass Worcester. I also see a neuro there who is in charge of the Dex trial at Mass General, and I forgot how to spell his name, so I'll have to send that to you tomorrow.
I LOVED my neuro at Beth Israel, his name is Dr. Seward Rutcove, and I would highly recommend him... he's also listed in Boston Magazine as one of the winners of "whatever" the award they were giving for his invention of an EMG type machine that isn't invasive. He also won a $1 million award for that invention. It's to help diagnose in the office more quickly, rather than have to wait for an EMG... and no needles.
I hope you get some GOOD answers for yourself soon. I'll try to send you the other name tomorrow, if I forget, remind me.
Take care!