Hi Everyone. It has been a rough month since my husband was diagnosed. After months of testing and saying NOTHING - the neuro diagnosed him with ALS. It started in his arm and now it is almost completely useless. (Although the limbs don't seem to be as affected as the bulbar symptoms) In the last month - the bulbar symptoms have come on with a vengeance. Choking, spitting, drooling but worse - breathing issues. In the hospital now because of breathing difficulties. (thought he was having another heart attack - it is very very painful).
The ALS seems to be moving to his feet and ankles. He says it hurts him. I thought after reading everything that it would progress - like one day he would just wake up and the limb wouldn't work any more - but it really doesn't happen that way. (He says he feels his muscles kind of "draw up" at night). If you all could help me to understand how it really works - and what to expect - I would be very thankful.