Today 09:51 PM - permalinkIzzy
Hello new ALS support family.
Tonight I have joined the site. My Mom was just diagnosed at 74 as having ALS. I don't think any of us were prepared for this news. To combat the sadness, I live 5 hours away. My sister is 3.
For anyone that may have ALS, do you have any advice in supporting our mom through the distance we have?
Also, she had a Doctors appointment today. I was there for 5 days over my vacation. The Dr. Has not told my Mom the expected priagnosis of events with the disease. I personally don't think she needs to know of the details. I think for now she needs to have hope and settle in to her diagnosis. Am I being too protective of her?
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