Hi Judy, I have had blood tests, EMG, NCS & MRI of neck and spine from the first neuro. He talked to me about ALS and said he wanted to call in the big guns. He sent me to a Dr. who he trained under at LSU Medical in New Orleans. This Dr. examined me looked at results from other tests then did another EMG or NCS (whichever one is with the needles). THen he said that it is a motor neuron disease, that there was no need for any further tests, that he could not say that it was ALS or not ALS but they had enough to want me to start on Rilutek and that they would just have to watch the progression. Then he sent me back to the first neuro who explained that they would not diagnose as ALS unless it was affecting my speech, breathing or swallowing. Then he said he would see me in 3 months. I could call if I needed anything before then. What is your pt doing with you? Are you doing any kind of exercise on your own?