Yes, I have talked with Sara. I haven't been to the spport group yet for purely slefish. While I intellectually know what lies ahead of me, I find being around other PALS (like at clinic) terrifying on a purely emothional one. I am a really slow progressor with only one hand and one ankle seriously affected. Maybe I just want to hold onto a fantasy of never being completely handicapped by this demon. Add to that, I have never was a big fan of support grooups. Last one I wnet to was 35 years ago, when my Dad was drinking, and I foundit not helpful.
Do you go to the clinic at UVA? I really love Ted Burns. He suspected ALS on 2009 but didn't say anything until he was absolutely sure.
Good luck, and we should have sunshine this afternoon!