I want to call her ten times a day but I know she wants some privacy right now. She sent out a generic e-mail to her friends and acquaintances asking for some time. She just wants to get her head around this and be with the family. Oh, Marta, what was it like during those first few days when you knew it ALS and you couldn't just keep on hoping it was something else? Alice, that is my sister's name, has registered on your site and she will come back. She will also encourage Ben, her husband, and her daughter, Charlotte, to do the same. We are making arrangements for them to also get in touch with the B.C. ALS support group. But, we're all so terrified and shocked. All we can do is cry. When I put the phone down, I just keep on crying. Alice says she's doing the same. What are we going to do??????