Hi Kiss....thanks for dropping by....I am doing ok, my sister was just here and it was such a joy to hang out with her for a week...but parting is sad as she left this morning. How am I doing? My legs cant handle just a cane anymore so I use a walker now. My voice is still somewhat understandable tho very slurred. My swallowing is more difficult, so I have gone to eating softer things, tho I managed to get down a big burger the other day. I wish I was on Dex and not the placebo, cuz if I could slow things down now, it would be good. But biogen drug company refuses to release Dex to compassionate use, tho its been around for 15 years! Makes me mad....grrrrr It must be tough for you to watch your loved one progress...I think it is worse than having it yourself....my sister cried a bunch when she saw how much I had progressed in a year. But I live in the moment, and usually the moment is pretty nice.
Love you!
sharon
Love you!
sharon