Tom,
My name is Scott. I was just (3/14/12) re-diagnosed w/ALS. My previous diagnosis was MMN. Your friend Peg B. (now mine!) suggested suggested I contact you as you've walked down the same path three years ago and thought you may be able some insites. I met Peg on a MMN forum. She seems to be a great woman. My wife and I had been looking around for some info on MMN, as its such a rare disease when I found the forum. Peg started replying to some of my posts and turned me onto NaturallySpeaking, which I'm using right now.
When Peg found out that I've been rediagnosed with ALS, she suggested I contact you. Anyways, nice to meet you!
I'm going to poke around this website and see what it's all about. If you can, let me know any tips.
Sincerely,
Scott Caventer