Hello Caroline,
Yes it has been a while since I have been on the forum. Along with all the progressing illness with my husband, our 42 yr old daughter died July 2009. I had a terrible flu and she helped take care of me, a week later she got the flu and it turned into phenomena and she died in four days. I have been trying to wrap my head around the fact that I may be losing my husband and then this happened. Life is very difficult. My husband is not well at all. The symptoms of babyinski, clonus, cramping etc., has moved to the other leg now and he has lost the fine motor skills in both hands. His speech is very slow and slurred and he has begun when laughing he can't seem to stop. He walks with 2 canes but his balance is terrible, he has to lean forward or he falls backward, he said his legs feel like they weigh 100 lbs each and he gets extremely fatigued with little exertion. He is still on the Bacloflin and soma if spasms get too bad. Take care my friend, Gracie