Diagnosed pma

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There may not be anyone currently with true PMA on this board. I can’t think of anyone who identifies as such. Fairly recently ( in the last year of less) there was someone with PMA on patientslikeme who had a PMA thread in the ALS subforum. You might like to join there and find it. If he is still around I am sure he would answer. If he isn’t you might find it helpful to read at least
 
Pure PMA is rare. My neuromuscular doctor told me a lot of people initially felt to have PMA are later reclassified as ALS. Apparently there was a study of people who died from PMA and many of them had findings of ALS on autopsy.

I have ALS which started out as lower motor neuron dominate, but eventually I developed jaw clonus after 2 years. I still have very little spasticity outside of my jaws. Everyone is different.
 
Hello l was wondering could be pma wihout twitching , crump and begins hip girdle and tigh very very simmetrical, and weakneses and atrophy togeter, stil walking with walker after 7 years from simptom onset, only legs. Thank you
 
I forget begins with proximal weakneses, not jumping ,not runing, raising from low chair, go up stairs,difficulty standing from square position , after 1 year developed distal weakneses, foot drop. All proximal weakneses was very simmetrical.
 
Twitching is not a requirement for the diagnosis of either PMA or ALS. So to answer your question, PMA is possible without twitching.

In terms of your other symptoms, they are not specific to any particular condition. Have you talked to your neurologist about your concerns?

What did your EMG show?
 
Please do not post the same question again. There will be no new answers. But we asked for a copy of your EMG to try and help you.

Best,
Laurie
 
Hello to everyone, lam may be annoying ,you want my emg result,in conclusion writen,in lower extremities showed widespread active denervation potentials in multiple myotomes and paraspinal levels, including the thoracic ones.the findings are consistent with polyradycoulopathy or motor neuron disease.
 
Can you please post the full report with the table of findings? There is a critical difference between polyradiculopathy and motor neuron disease, and the EMG can normally differentiate these fairly conclusively.
 
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I read that motor poly radyculapathy begins simmetrical,in hip and thigh muscles, proximal, my symptoms begins simmetricaly,
 
The positive sharp waves in many muscles is worrisome for ALS but the normal insertional activity goes against it. You need to discuss the findings and your questions with your doctors.
 
I forget my legs already 2,3 years swelling ankles, sole of footlower part of legs , lam walking with walker slowly ,not paralysed. I know that if legs or hands paralyzed could be sweling.
 
Hello nobady answer me, what you think about my emg, l don't have fasiculation,, but fibs and psw is not normal, and insertion activity is normal what that mean. I having veird sensation sole of my feet, like something there,like sweling sansation.sometimes l having burning sensation my lower legs.l said my neurologist he didn't say anythig.
 
Karen DID answer you. It isn’t classic ALS emg so we don’t know. You need to talk to your doctor if they are a neuromuscular specialist. If they are not find one.
 
There are several good ALS clinics around LA, including Cedars-Sinai, USC, UCLA and Loma Linda.
 
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