Alsmess
Member
- Joined
- Jul 27, 2019
- Messages
- 15
- Reason
- Loved one DX
- Diagnosis
- 07/2019
- Country
- TR
- State
- TR
- City
- Istanbul
Hi,
My dad has ALS, and started to show symptoms of ALS a year ago.
January 2019 - First he had difficulty with his voice and talking and had muscle twitches, and slightly loss of power at his one arm. These were at minimum , like around January 2019. He was laughing easily to funny things much more than his usual reaction.
April 2019 - A little difficulty in walking, loss of power in left hand to grip. Slower and slurring speech get worse. Sometimes crying. I didnt see my dad crying until this illness.
August 2019 - Same symptoms keep getting worse. His loss of power increased in his boyh arms and legs. Started to walk slower, started to talk a bit more slower. Laughing and crying was same. He doesnt cry at home often but for example if a relative or friend see him after a long time, he cries. (Feeling shy because of his situation).
December 2019 - A bit more slower speech, slurring a bit more. Walking slower than before because of loss of power. But still was able to go out and make 30-60 minutes of walking daily. (Always with my mom, when walking, but no need for support to walk). Still able to drive car.
May 2020 - Now his rate of walking is much slower, he didnt go walking in last 3 months because he walks very slowly anymore and its hard/tiring for him. His steps are around a feet. He can walk in house without support, but he cant move his arms as good as before. So he needs help for showering. He can eat himself but for example he cant break a bread wih his hands, because of more loss of power. He cant drive a car anymore. Sometimes coughing when eating, but never told that he has respitory problems. His appetite is good and he didnt lose any weight.
When i asked to Doctor if it can be PLS for a hope, he personally said me it is ALS %99, %1 PLS, but this was like 5 months ago. My dad dont want to go doctor anymore.
Now, i want to ask you a few questions ;
1) Is this a fast progressing ALS, or normal. Not a slow progressing for sure?
2) Is there a chance that his symptoms to get plateau for speaking/walking/power?
3) Do you still think is there a chance that he is PLS, not ALS? Is there a chance that he is PLS while he has both walking and speech problems, loss of power and excessive crying/laughing in some situations?
4) If you had ALS, can you tell me how was the timeline for loss of speech totally or walking, using your hands to eat on your own.
I totally know “you are not a doctor and you cant exactly know the answers of my questions”, im just asking your opinions. I will be very happy for every single answer and opinion.
My dad has ALS, and started to show symptoms of ALS a year ago.
January 2019 - First he had difficulty with his voice and talking and had muscle twitches, and slightly loss of power at his one arm. These were at minimum , like around January 2019. He was laughing easily to funny things much more than his usual reaction.
April 2019 - A little difficulty in walking, loss of power in left hand to grip. Slower and slurring speech get worse. Sometimes crying. I didnt see my dad crying until this illness.
August 2019 - Same symptoms keep getting worse. His loss of power increased in his boyh arms and legs. Started to walk slower, started to talk a bit more slower. Laughing and crying was same. He doesnt cry at home often but for example if a relative or friend see him after a long time, he cries. (Feeling shy because of his situation).
December 2019 - A bit more slower speech, slurring a bit more. Walking slower than before because of loss of power. But still was able to go out and make 30-60 minutes of walking daily. (Always with my mom, when walking, but no need for support to walk). Still able to drive car.
May 2020 - Now his rate of walking is much slower, he didnt go walking in last 3 months because he walks very slowly anymore and its hard/tiring for him. His steps are around a feet. He can walk in house without support, but he cant move his arms as good as before. So he needs help for showering. He can eat himself but for example he cant break a bread wih his hands, because of more loss of power. He cant drive a car anymore. Sometimes coughing when eating, but never told that he has respitory problems. His appetite is good and he didnt lose any weight.
When i asked to Doctor if it can be PLS for a hope, he personally said me it is ALS %99, %1 PLS, but this was like 5 months ago. My dad dont want to go doctor anymore.
Now, i want to ask you a few questions ;
1) Is this a fast progressing ALS, or normal. Not a slow progressing for sure?
2) Is there a chance that his symptoms to get plateau for speaking/walking/power?
3) Do you still think is there a chance that he is PLS, not ALS? Is there a chance that he is PLS while he has both walking and speech problems, loss of power and excessive crying/laughing in some situations?
4) If you had ALS, can you tell me how was the timeline for loss of speech totally or walking, using your hands to eat on your own.
I totally know “you are not a doctor and you cant exactly know the answers of my questions”, im just asking your opinions. I will be very happy for every single answer and opinion.