Nihilsum
Member
- Joined
- Feb 15, 2020
- Messages
- 10
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- SW
- State
- GE
- City
- Geneva
Hello everyone,
First of all I would like sorry for my not perfect English.
I will tell you about my story
There are 3 month I lost so many weight (10kg) I didnt expected because im beginning to lose so many muscles. In more because I did a lot of musculation /fitness in a fitness room to gain some muscles and lose some fatness. And my strengh performance was increase about each week.
After my holidays from Indonesia, I finally noticed I lose more muscles than fatness. I lose mainly arms ans legs.
After that all my problems have started: (in the order)
Extreme tired
I lose mostly all my strenghness, but I cant still walk (not so much)
A lot of cramps for a little exercices (arms and legs)
All my muscles are atrophy and my hands and my feets are so fit now.
I have some trouble with my articulation since maybe I lose muscles on my face (even my jaw, can feel my bones during chewing). My wristle is thiner than a little boy now.
Fascicultion mostly legs and now arms and my hands.
So I saw a Neurologue and did EMG just after the fascicultions in my legs (and my muscles already atrophied)
The résults of the exam is dont suspicious als and ENMG normal. But I really dont understand why the ENMG was normal because im still see my muscles more atrophied and reduce. Fascicultions is more often and progress on my body.
I mean... I have maybe 95% of the symptôms about spinal ALS. So why the ENMG and Neurologue didnt noticed ? In more my symptôms progress a lot each day and crazily.
What I have to do ?
Im 28 yo never been hypocondriaq in my life.
Thanks for your concern,
N.B: I did all exams and all clear first off all about my travel in Indonesia because I suspected parasite first about my weight losed
First of all I would like sorry for my not perfect English.
I will tell you about my story
There are 3 month I lost so many weight (10kg) I didnt expected because im beginning to lose so many muscles. In more because I did a lot of musculation /fitness in a fitness room to gain some muscles and lose some fatness. And my strengh performance was increase about each week.
After my holidays from Indonesia, I finally noticed I lose more muscles than fatness. I lose mainly arms ans legs.
After that all my problems have started: (in the order)
Extreme tired
I lose mostly all my strenghness, but I cant still walk (not so much)
A lot of cramps for a little exercices (arms and legs)
All my muscles are atrophy and my hands and my feets are so fit now.
I have some trouble with my articulation since maybe I lose muscles on my face (even my jaw, can feel my bones during chewing). My wristle is thiner than a little boy now.
Fascicultion mostly legs and now arms and my hands.
So I saw a Neurologue and did EMG just after the fascicultions in my legs (and my muscles already atrophied)
The résults of the exam is dont suspicious als and ENMG normal. But I really dont understand why the ENMG was normal because im still see my muscles more atrophied and reduce. Fascicultions is more often and progress on my body.
I mean... I have maybe 95% of the symptôms about spinal ALS. So why the ENMG and Neurologue didnt noticed ? In more my symptôms progress a lot each day and crazily.
What I have to do ?
Im 28 yo never been hypocondriaq in my life.
Thanks for your concern,
N.B: I did all exams and all clear first off all about my travel in Indonesia because I suspected parasite first about my weight losed
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