ENMG clear but...

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Nihilsum

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Learn about ALS
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Hello everyone,

First of all I would like sorry for my not perfect English.

I will tell you about my story

There are 3 month I lost so many weight (10kg) I didnt expected because im beginning to lose so many muscles. In more because I did a lot of musculation /fitness in a fitness room to gain some muscles and lose some fatness. And my strengh performance was increase about each week.
After my holidays from Indonesia, I finally noticed I lose more muscles than fatness. I lose mainly arms ans legs.

After that all my problems have started: (in the order)

Extreme tired
I lose mostly all my strenghness, but I cant still walk (not so much)
A lot of cramps for a little exercices (arms and legs)
All my muscles are atrophy and my hands and my feets are so fit now.
I have some trouble with my articulation since maybe I lose muscles on my face (even my jaw, can feel my bones during chewing). My wristle is thiner than a little boy now.
Fascicultion mostly legs and now arms and my hands.

So I saw a Neurologue and did EMG just after the fascicultions in my legs (and my muscles already atrophied)
The résults of the exam is dont suspicious als and ENMG normal. But I really dont understand why the ENMG was normal because im still see my muscles more atrophied and reduce. Fascicultions is more often and progress on my body.

I mean... I have maybe 95% of the symptôms about spinal ALS. So why the ENMG and Neurologue didnt noticed ? In more my symptôms progress a lot each day and crazily.

What I have to do ?
Im 28 yo never been hypocondriaq in my life.
Thanks for your concern,

N.B: I did all exams and all clear first off all about my travel in Indonesia because I suspected parasite first about my weight losed
 

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Your EMG is normal because you don’t have ALS. There are many other causes of decreased muscle bulk. Did your doctor find weakness? Increased reflexes?

ALS is a brain disease. Motor neurons stop working and die. The muscles fail because the lose their stimulation and signal from the nerves. The EMG in someone with ALS shows this denervation. There are other diseases that can affect the muscles but don’t involve denervation. Keep working with your doctors.
 
I read the topic before which one I have to before posting. But Im still questioning why then I have all the same symptôms ? Maybe the Neurologue didnt do well the EMG ? Too early ? I have the bulbar ALS first ?

My weakness begin to more and more justly because I still losing muscles.
I will see a new Neurologue tomorrow hoping they can help me.
 
I'm not sure what you mean by "all the signs of ALS" since you have had a clean EMG, do not describe any ALS symptoms (there's no such thing as spinal ALS. ALS is a brain disease, not a bone disease), and have been cleared by a neurologist. Perhaps further discussions with your neurologist will put your mind at ease. As it stands now, however, you don't have ALS. That's great news.
 
Sorry I did some miss typing, I corrected.

"I have some trouble with my articulation since maybe I lose muscles on my face (even my jaw, can feel my bones during chewing)."

I still cannot understand why i cant gain muscles. My distal muscles are so thin. Hands and feets like a cavity:
 

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Please go back to your doctor for help - your hands and feet look perfectly normal and we ask not to send us photos as they are not helpful. All the best, you really don't have ALS and no symptoms of ALS. I know you think you do, but that is because you are not a doctor and are very scared. This is the reason coming here and continuing this is so bad for you - you have no medical knowledge and are just jumping through fear to fear.

Please stop now, post no more, go back and talk with your doctor. All the very best.
 
Please read or reread this if you have not already done so

Keep in mind that what is important when it comes to diagnosing ALS is the big picture: clinical weakness as determined by a physician, characteristic EMG changes in multiple muscle areas, upper motor neuron signs, evidence of disease progression, and ruling out ALS mimics. If you don’t have these things, you don’t have ALS. Atrophy and twitching are nonspecific.

There’s not more people on this forum can tell you. Please do not message PALS or CALS. I’ll be closing this thread. Please do not start another.
 
Hello,

I would like said thank you to not believe in me and my symtoms.

But I did a second EMG and is abnormal.
I have to do 2 MRI. Maybe other think tomorrow now.

My tongue begin to do some fascicultions and be attrophied.

I dont know why with all my symptôms before you didnt believe me. It was so obvious.

Explain me...

So my lower motor is impacted. I think i dont have any chance to get another diagnostic differenciel ?

Thanks for your concerning,
 
I have opened this thread again only so you can post ( with identifying data removed) your reported abnormal emg. Since emgs can be abnormal in many ways and most of them have nothing to do with ALS only seeing the emg will allow us to answer

please do not post anything but the emg results or I will close the thread again. Everyone else please refrain from commenting until the report is given, thank you
 
Hello it's me again,

I did a second EMG and isnt good at all with my legs.
Kinda worry because after that I did a clean MRI (for everything)

I still lose my muscles, my body touched as well because now my neck is weak like my back.
Very hard for me to walk now.

Now I have fascicultions at my tongue, and begin to be atrophied.

I have still my legs as well twitching.

What I have to do now ?

Thanks, best regards,
 

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There is no spontaneous activity as would be seen in ALS. What did the doctor say? What did the summary say?
 
I don’t see anything that looks like ALS.
 
Congratulations on your EMG showing no signs of ALS :)
Now you need to work with your doctor - you realise people with a terminal illness can't do anything more to help?
All the very best, I'm sure your doctor will know what to do next.
 
For you the EMG is normal or I meant no sign of ALS but my Neurologie see an abnormal sign. My nerves do a chronic die and regenerates.
He saw that on my legs.
(And in the second attachment we can see the comment "interference trace with doubt neurogenic component")

So I did the MRI the after day and was totally normal. So I cant explain why the first time the EMG was good with the other doctor.

Now I have to wait a new appointement with a Neurologue specialist in ALS and others. And to do the special machina to see if my upper motor is touched.

But I dont believe in any chance mainly when my tongue is impacted now...
 
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