Nikki J
Moderator
- Joined
- Mar 22, 2012
- Messages
- 16,459
- Reason
- PALS
- Diagnosis
- 04/2014
- Country
- US
- State
- MA
- City
- Boston
I have written here about this before. My mother chose no tube my sister delayed until she was choking on every bit of food , every drop of liquid. It was torture to watch and exhausting to try to feed. I still have a kind of PTSD from it which is why I am answering here. It is a kindness to your family to get a tube so they don’t have to endure that. If you chose you can not use it, stop using it or have it removed but before you die from not eating / drinking unless you VSED there will be some miserable weeks, months for my mother it was years not just for you but for your family