johnny5
Active member
- Joined
- Jul 22, 2019
- Messages
- 30
- Reason
- PALS
- Diagnosis
- 10/2019
- Country
- US
- State
- FL
I have been referred to the Jacksonville Mayo Clinic to rule out ALS by my local Orlando Neuromuscular Neurologist who deals primarily with MS. After 3 NCV/EMG's that come up abnormal, 2 spine surgeries and the removal of half of my thyroid, he ran out of things to rule out.
My Appt is 16 August. I have weakness and atrophy in both legs, left leg with drop foot was caused by radiculopathy but has gotten worse and contradicts what I should have experienced. I am a veteran also. The VA neurology department wanted to feed me pills so I found another who would try to find the cause of all these fasciculations and the weakness.
I got fasc's in Jan 2017, limited to my L Leg. They started popping in my R Leg shortly thereafter, only very slow. About 8 months ago, they started in my hands, then arms with weakness, the Leg fasc's are constant, 24/7 now. I have to use a cane, and the VA gave me AFO originally, and now a KAFO because my L Knee is weak and kicks out on me when I walk.
In 2016, my brother passed from ALS. He was diagnosed in Oct 2015, and on 6 Jan 2016 he was gone. His progression was very fast. I pray that this is something besides ALS but the situation tells me that its a definite possibility, so I want to be prepared either way. I've been reading up on ALS for most of this year, and am glad I found this website.
My Appt is 16 August. I have weakness and atrophy in both legs, left leg with drop foot was caused by radiculopathy but has gotten worse and contradicts what I should have experienced. I am a veteran also. The VA neurology department wanted to feed me pills so I found another who would try to find the cause of all these fasciculations and the weakness.
I got fasc's in Jan 2017, limited to my L Leg. They started popping in my R Leg shortly thereafter, only very slow. About 8 months ago, they started in my hands, then arms with weakness, the Leg fasc's are constant, 24/7 now. I have to use a cane, and the VA gave me AFO originally, and now a KAFO because my L Knee is weak and kicks out on me when I walk.
In 2016, my brother passed from ALS. He was diagnosed in Oct 2015, and on 6 Jan 2016 he was gone. His progression was very fast. I pray that this is something besides ALS but the situation tells me that its a definite possibility, so I want to be prepared either way. I've been reading up on ALS for most of this year, and am glad I found this website.