Any thoughts on preparing for my Mayo trip? I was told to bring all my imaging discs, reports, blood work records,medications,etc but the impression I got was Mayo will want to do their own tests and exams anyway.
Post visit and assuming a diagnosis what do I need to bring home? I assume they will provide literature but this sites is likely way more informative. Is there an actual document that says this patient has ALS? I assume I would need that for SSDI, Clinic enrollments etc?
Just trying to prepare for the worst, while of course hoping for something other than ALS.
My symptoms seem to have worsened with the clonus especially - I can’t even count the beats as they are that rapid and continuous as well as shoulder pain and hand/wrist soreness bilaterally.
As always, thanks for any input. Sorry for the length of this thread. Tom