Recent content by ZenArcher

This is Jeff Faull's wife Tammy. I wanted to let everyone know that Jeff passed away Friday October 14. Thanks for supporting him. He liked to help others as much as he could. I will post more later. Thanks again.

The inflation pressure on a ROHO cushion is extremely important when it comes to comfort. This link shows the recommended inflation procedure. Adjustment Instructions

There is no proof out there that stem cells do anything and anyone claiming they can do anything to ALS progression with stem cells now is a charlatan plain and simple. As far as trials goes try for the ones that you feel may help but make sure that the trial protocol won't cause undue stress...

The link Caregiver Services - VA Caregivers

I know this was posted before but the VA changed the page. I think it is more informative. I will post the link in a follow up. You may know that VA provides benefits and services for Veterans, but did you know that VA also has a number of services designed specifically to support you in your...

You should be using the Paralyzed Veterans of America (PVA). They have an office in the regional VA building and have worked directly with ALSA to make sure veterans with ALS are taken care of.

I used to post quite a bit in that portion of the forum. Now for the exact reasons Al mentions I don't even read it. For those with legitimate issues sorry but others have ruined it for me.

The first thing any veteran with ALS needs to do is contact their local Paralyzed Veterans of America (PVA) chapter. PVA has and continues to work with the ALS Association to ensure that veterans with ALS get what they need and deserve as quickly as possible. The other organizations are all good...

I have no advice to offer I would simply like to say thank you.

I used glycopyrrolate and had the same issue. I found increasing my fluids and a Senna Plus every other night straightened me out.

I agree, the first thing to do is have a discussion with your doctor. Acetaminophen and Ibuprofen can be toxic if taken in amounts not much larger than the recommended dosage or if taken with alcohol. Your doctor can work with you to find what works best for your pain and situation. It may be...

Things that help with spasticity like Baclofen or Lorazepam will help but I don't know of any way to stop it completely.

I would recommend you get a van that has already been modified. Find a large dealer in your area that has worked with the automotive grant. The VA will pay for the cost of all modifications done and a one time $10,000 grant towards the vehicle itself.

I wish I had the magic words but I don't. If I can do anything just ask. Try Military dot c o m to find other service members from Ft Lee or AZ.

It may well be for infants only. The story I read spoke of infants but did not specify for the warning.