Recent content by xsparklingwinex

  1. xsparklingwinex

    Thank you for the warm welcome Zaphoon xD

    Thank you for the warm welcome Zaphoon xD
  2. xsparklingwinex

    Denial

    Balance, What you call denial, I call hope. There is a big difference between logically grasping you are ill and emotionally accepting it. It's a really thin line. While some will say you have to accept that you are sick, I argue the point that if mind over matter is even a possibility...
  3. xsparklingwinex

    Thalidomide

    Why the study was terminated: OBJECTIVE : Neuroinflammation contributes to motor neuron degeneration in ALS. Thalidomide (THL) shows potent anti-inflammatory properties and increased the lifespan in ALS transgenic mice. Thalidomide was therefore suggested as atherapeutic intervention for the...
  4. xsparklingwinex

    Thalidomide

    Thank you.. I also ended up finding this.. : Clinical Trial of Thalidomide Dartmouth-Hitchcock Medical Center Background: Previous research has shown that an immune-system compound called TNF-alpha is elevated in ALS. There is evidence that thalidomide may reduce the synthesis of this...
  5. xsparklingwinex

    Monterrey, Mexico.....New Hope

    What is killing the motor neurons? Having an injection done for so much money.. who's to say what killed them the first time.. won't kill them again? It's kind of like continuing to fill a cracked glass with water no? I am sorry if it sounds harsh. I am all for the hope of a cure and belief...
  6. xsparklingwinex

    Fear Of Leaving The House

    I haven't been outside in almost a year... I am afraid I'll have to pee or that I'll fall etc. I have actually come to the point I am afraid to go outside. When I do leave the house.. for Doctor's appointments and whatnot we have to call a rescue to transport. I live on the 2nd floor with...
  7. xsparklingwinex

    A Thanksgiving With PLS

    Delete this please, starting a new thread.
  8. xsparklingwinex

    1st ALS clinic appointment

    Best of luck Sharona!
  9. xsparklingwinex

    Keeping track of who is from where

    Hey I'm Holly 27 from Rhode Island. Nice to meet who I haven't smiles :)
  10. xsparklingwinex

    Post things to cheer up people

    This is a WONDERFUL idea for a thread, *Just grins ear to ear*
  11. xsparklingwinex

    sticky mucas like glue

    Hey everyone, :) I haven't been around for quite some time but I do skim the forums a bit. This topic I figured I should add to as I have been having a similar problem. Basically the thick stuff is due to the fact we aren't as mobile. The stuff that would normally come out with exercise and...
  12. xsparklingwinex

    Thalidomide

    Does anyone know why the FDA terminated the clinical trial for Thalidomide? :confused:
  13. xsparklingwinex

    just found out

    Thanks for the tip BWK :-D
  14. xsparklingwinex

    I Have been away a while.

    Hello everyone. It is nice to be back. Happy Holidays all :) Florida is awesome Al, we are loving it! :) Cindy I bust people's chops back home too about the warmth lol ~ Def one of the perks hehe (I know I'm guilty :-D) Liz, nice to meet you as well. I was diagnosed 2 years ago but luckily it...
  15. xsparklingwinex

    Throat Spasms

    Well thank you Barry. Will def look into that. Merry Christmas :)
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