Recent content by xoinnamorata

A year & who knows how many doctors later, I finally have a diagnosis of esophageal achalasia. I've steered clear of this board for awhile, but I wanted to follow-up with the update. Nice to have answers. Wish it was something simpler, but I know too well now that it can be much worse. Blessings...

I apologize, but I just need to clear my head a bit. I am going fairly stir crazy after 9 months of swallowing problems and no relief or answers. I am still not choking. Still not having problems with my speech or my voice. I just feel a significant amount of tension or tightness in my throat...

Sorry, I repeated several statements several times. :P I am posting from my iPhone and cannot scroll up very easily. I hope the point came through. ;)

LifeWorthLiving, I just want to point out something that you said to give you a bit of reassurance, if possible. You say that most of the people on this forum are confirmed diagnoses. I just wanted to point something out to you. Most of the people that are here responding to us and giving us...

Merry Christmas to you and your family! I hope that you are hanging in there! You have been in my thoughts. I've finally written enough to get private messages! :P So keep me posted!

Thank you so much! :) Same to you! May the Lord bless you a keep, his countenance to shine upon you and give you peace! Merry Christmas! :)

My doctors are all focused on my brisk knee reflexes, but they have been jumpy for as long as I can remember. Maybe not to this degree? I don't know. A good portion of normal, healthy people have brisk reflexes. My mom, dad, and sister do, as well. The brisk knee reflexes don't personally give...

I went to see my "neuromuscular specialist". He was listed as the only one in my insurance company's info. When I scheduled my appointment, I explained my concerns. Fasciculations, swallowing problems, hand tremors, perceived weakness, etc. noting that the swallowing problems were my most...

Happy to hear that your EMG went well! I still think it is amazing that you were able to get your testing done so quickly. I am being sent to WVU next for a new LP and not entirely sure what else if anything they will be testing. Not sure when that appointment will be. Seems like it takes two or...

What was the site that you were talking about that you mentioned explained what each disc affects? It sounds like an interesting read, but I do no see a link.

My tongue feels a bit strange, but I don't feel fatigue or achiness. Most of my symptoms seem to be in my throat, down around the Adam's apple area, like you described. (No Adam's apple here, as I'm female. :P ) I can definitely understand what you are saying. It is very reassuring to hear that...

You sound a LOT like me. My swallowing issues started suddenly, as well, with the sore throat, thick phlegm, and clicking. Over a couple of weeks, I developed the other sensations. Of a strange tightness or constriction. Just like I have to "swallow harder" to get things down. It is the worst...

I saw the ENT. He noted that the back of my tongue and throat were dry but that he wouldn't consider it dry mouth. The bottom of my throat is also a little swollen and pink. My legs are still concerning me. I have had a bit more success with walking around. For a couple weeks, I could barely...

And yes, my mom has a Baclofen pump. My neuro hasn't suggested it with me, yet. I will discuss it with the specialist next month.

My mom and cousins have only had their legs affected. My grandpa had a little in his arms in the very end. What other things did it affect in your family?