Recent content by xoinnamorata

  1. X

    Update on Swallowing Problems.

    A year & who knows how many doctors later, I finally have a diagnosis of esophageal achalasia. I've steered clear of this board for awhile, but I wanted to follow-up with the update. Nice to have answers. Wish it was something simpler, but I know too well now that it can be much worse. Blessings...
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    Lots of questions, very scared. Bulbar at 27?

    I apologize, but I just need to clear my head a bit. I am going fairly stir crazy after 9 months of swallowing problems and no relief or answers. I am still not choking. Still not having problems with my speech or my voice. I just feel a significant amount of tension or tightness in my throat...
  3. X

    Not looking for answers, just common ground.

    Sorry, I repeated several statements several times. :P I am posting from my iPhone and cannot scroll up very easily. I hope the point came through. ;)
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    Not looking for answers, just common ground.

    LifeWorthLiving, I just want to point out something that you said to give you a bit of reassurance, if possible. You say that most of the people on this forum are confirmed diagnoses. I just wanted to point something out to you. Most of the people that are here responding to us and giving us...
  5. X

    Merry Christmas to you and your family! I hope that you are hanging in there! You have been in...

    Merry Christmas to you and your family! I hope that you are hanging in there! You have been in my thoughts. I've finally written enough to get private messages! :P So keep me posted!
  6. X

    Thank you so much! :) Same to you! May the Lord bless you a keep, his countenance to shine upon...

    Thank you so much! :) Same to you! May the Lord bless you a keep, his countenance to shine upon you and give you peace! Merry Christmas! :)
  7. X

    In the process of ruling out ALS

    My doctors are all focused on my brisk knee reflexes, but they have been jumpy for as long as I can remember. Maybe not to this degree? I don't know. A good portion of normal, healthy people have brisk reflexes. My mom, dad, and sister do, as well. The brisk knee reflexes don't personally give...
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    Lots of questions, very scared. Bulbar at 27?

    I went to see my "neuromuscular specialist". He was listed as the only one in my insurance company's info. When I scheduled my appointment, I explained my concerns. Fasciculations, swallowing problems, hand tremors, perceived weakness, etc. noting that the swallowing problems were my most...
  9. X

    Ongoing dysphagia

    Happy to hear that your EMG went well! I still think it is amazing that you were able to get your testing done so quickly. I am being sent to WVU next for a new LP and not entirely sure what else if anything they will be testing. Not sure when that appointment will be. Seems like it takes two or...
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    cervical stenosis to ALS?

    What was the site that you were talking about that you mentioned explained what each disc affects? It sounds like an interesting read, but I do no see a link.
  11. X

    Ongoing dysphagia

    My tongue feels a bit strange, but I don't feel fatigue or achiness. Most of my symptoms seem to be in my throat, down around the Adam's apple area, like you described. (No Adam's apple here, as I'm female. :P ) I can definitely understand what you are saying. It is very reassuring to hear that...
  12. X

    Ongoing dysphagia

    You sound a LOT like me. My swallowing issues started suddenly, as well, with the sore throat, thick phlegm, and clicking. Over a couple of weeks, I developed the other sensations. Of a strange tightness or constriction. Just like I have to "swallow harder" to get things down. It is the worst...
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    Lots of questions, very scared. Bulbar at 27?

    I saw the ENT. He noted that the back of my tongue and throat were dry but that he wouldn't consider it dry mouth. The bottom of my throat is also a little swollen and pink. My legs are still concerning me. I have had a bit more success with walking around. For a couple weeks, I could barely...
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    Lots of questions, very scared. Bulbar at 27?

    And yes, my mom has a Baclofen pump. My neuro hasn't suggested it with me, yet. I will discuss it with the specialist next month.
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    Lots of questions, very scared. Bulbar at 27?

    My mom and cousins have only had their legs affected. My grandpa had a little in his arms in the very end. What other things did it affect in your family?
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