Recent content by Xfile1966

Actually, I'm a medical mystery right now. I have muscle weakness/atrophy/twitches but few, if any, upper neuron symptoms (my reflexes at my kness are slightly brisk). My EMGs have all been OK so neuro says not ALS. According to the article in my link if you have ALS your EMG is going to show...

I have alot of muscle pain, twitching, exercise intollerance, etc. but neuros say no ALS. Someone posted a good link/article about this under my subject thread ALS vs Neck Injury. If you can find it I bet it will ease your mind about the twitching. It did me. I would post it but it came from...

I have alot of muscle pain, twitching, exercise/usage muscle weakness and even some atrophy and 2 neuros say I don't have ALS. Someone posted a good link/article about it all under my questions in ALS vs Neck Injury. If you can find the link/article it will probably make you feel alot better...

I have never been checked for MS or Lyme. I hope the experts at Emory do so. My orthopedic doctor (for my scoliosis and degenerative back problems) says it could be MS because it tends to be worse on one side, I have sensory issues, and vertigo. But she also said it could be one of MANY types...

Vicki - do you ever suffer from vertigo? I had a really nasty headache Friday and Saturday then I woke with vertigo in the middle of the night Sunday. Still here today (of course its s holiday week so difficult to get in to see a Dr) so I'm taking sudafed hoping its sinus related. I don't...

Vicki its hard to explain. Go to google and search for 23andme. It seems very interesting. Not sure how accurate it is but for someone with no family history like me its worth s shot. I imagine doctors hate things like these but like you said - we know our own bodies best and have to get the...

The key is to never give up and advocate for yourself. Vickie you and I seem to share a lot of symptom - weakness, scoliosis, heart rhythm issues - I have hope mine it mito as well (not that I wish it on you)! Ive decided to order the 23andme medical /ancestry kit and take the test. It may...

I definitely am going to ask for a muscle biopsy. And get tested for Lyme. I had 2 muscles in my cervical spine area that showed chronic denervation/renervation. The rest of my muscles were fine. Because these 2 were off I had the cervical MRI. The lady doctor who did the EMG said no ALS and so...

I have left sided weakness -have had it for years. Head to toe. But there is nothing I cant do if I had to absolutely do it. Ive been lightly stretching and exercising my legs at night. They ache and hurt regardless so I'm hoping to tone them a bit. I belong to a gym but I'm thinking weights...

Ho hum. I'm still concerned about the No - ALS DX. My legs continue to deteriorate at an alarming rate - I'm afraid that at this rate I won't be walking when I go to Emory in Feb. My calves are very very thin and flabby - my thighs are getting flabby too. I realize I'm probably adding fuel to...

Yep, Vicki. If it's mito disease it sure waited until I was much older to show itself. So many strange things out there.... I noticed today that when I'm really stressed that this is the time I feel most weak and my heart does it's weird "let's beat super slow or high and flip flop like a fish"...

Ps- I have a daughter so if mito disease is passed through the Mom I definitely need to find out before she has children of her own.

Vicki- I hope the doctors at Emory recommend one. I also hope they'll test for Lyme disease. I see the doctor who performed my latest EMG next week so ill go over questions to ask and things to do. :-)

Great article! Very informative. My twitching is definitely NOT like ALS. It comes and goes and is all over the place! And not necessarily in my weaker muscles. My left side muscles are clinically weaker than my right side and there is more atrophy. But I'm still able to stand on my left leg...

I will add that I have brisk reflexes at my knees (no where else), but no babinksi sign, etc.... I don't startle easily, don't have spasticity and have never had a cramp. Except for my knee reflexes I have no upper motor neuron symptoms, which is probably why the doctors won't DX ALS - esp with...