Recent content by Wynn

I've ordered DynaVox Maestro.

thanks, caldona

Thanks a lot.

Which has the better service? Does anyone have any problems with either of them? I have been approved for a device--my speech is shot!

I have been diagosed with ET, PLS, primary progressive aphasia (onset Fall of '06), and also have a Parkinson's tremor. I would say it is PPA. Wynn

I went to an Alzheimer's disease/frontotemporal dementia specialist at the UT medical school today (my ALS/PLS specialist referred me). He is a neurologist and a psychiatrist. My wife and I were in the examining room with him for almost three hours. To make a long story short, in addition...

Re: Als Editorial by my doctor. I liked it, too. It is good advice. But, I would still try alternative treatments that I could afford. As we all know, every case is different. There has to be a reason for their all being different. Who knows, maybe some small difference in our gene make-up...

I only have PLS and essential tremor. Can you put me on the map in Fort Worth, TX? Wynn

Have ever had asthma? Ask you GP what he/she thinks about prescribing an albuterol inhaler. Wynn

This is a good link for myesthenia gravis: Myasthenia gravis - MayoClinic.com

You should try to get him to the University of Texas Southwestern Medical Center in Dallas--that's the medical school (that's where I go). The number for the MDA/ALS Clinic is 214-645-8000, fax 214-645-8802. How old is he? Wynn

Laurie Did he test you for myesthenia gravis? Wynn

Zaphoon Have you tried gabapentin (neurontin)? I have PLS--I also have an advanced case of essential tremor. The tremor specialist put me on gabapentin. The ALS specialist was about to put me on Baclofen, but didn't because he told me the gabapentin was working perfectly. The only side...

Please keep us posted frequently on how it goes. Wynn

Thanks, Zaphoon