Recent content by writer07

  1. W

    My story so far, does this sound like ALS?

    Sorry, I meant Iron Horse Diagnostics
  2. W

    My story so far, does this sound like ALS?

    I understand what you are going through as I have had cramps and Fasciculation in strange places including abdomen since 11/2011. I am not young and continue to worry. I have been researching since my onset and have found out that White Horse Diagnostics spinal test for ALS is in the validation...
  3. W

    Mild paresis in right vocal fold and bulbar

    Thanks so much. I was doing ok until today the ent dropped the paresis or mild weakness in my larynx bomb. So scary, wish I had answers that could help everyone.
  4. W

    Mild paresis in right vocal fold and bulbar

    Thanks to all of you for any input. I am really hoping that one of the new meds shows promise soon. I had started another thread regarding my symptoms and was much relieved, however now I have new information. Here are my symptoms. I am 54 y.o. 11/2012 abrupt onset of pain and burning...
  5. W

    Dear awielaba, I read your 2008 post and your story was very much like mine. Pain the moves...

    Dear awielaba, I read your 2008 post and your story was very much like mine. Pain the moves around, fairly sudden onset. May I ask how you are doing? Were you ever diagnosed? Thanks and hope and pray you are ok
  6. W

    Hope you get good news. I have had bfs per my neuromuscular guy for the past four and one half...

    Hope you get good news. I have had bfs per my neuromuscular guy for the past four and one half months but have not had an emg. Neuro and physical therapist said no weakness, am strong now I have getting bulbar symptoms, biting my tongue and cheeks, jaw and teeth pain. Is this possible?
  7. W

    Is this alsqq

    To all, I thank you for your time and appreciate any response. I am hoping that they find some effective treatment very soon for this very cruel disease. My symptoms started almost four and one half months ago. It came on suddenly with burning and pain that migrated though out my body, ankles...
  8. W

    What about TDP-43/FUS testing for diagnosis?

    I would like to start off by saying that I admire the courage of all of you and willingness to help other people. Truly inspirational. I have been diagnosed with both fibromyalgia and BFS and have a question that may help other people. Did anyone consider getting gene testing TDP-43/FUS to help...
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