Recent content by worrieddaughter77

  1. worrieddaughter77

    Bushfires in Oz

    What a beautiful video, thank you, Tillie!
  2. worrieddaughter77

    My dad is still doing well...

    This is an article in a local newspaper about the New concept of living in these community buildings where all generations can live together, and facilities from daycare to a nursing home are all located closeby. Our family was featured as an example the. (the top left).
  3. worrieddaughter77

    My dad is still doing well...

    This is a note on the door of my dad's room in his home. It's a reminder of my dad's needs to every new staff that takes care of him. The first time I saw this, I broke in tears.
  4. worrieddaughter77

    My dad is still doing well...

    Some of my dad's amazing nurses and my dad.
  5. worrieddaughter77

    My dad is still doing well...

    Hi everyone, First of all I would like to thank you all for being such an invaluable community for the newly diagnosed and beyond. I don't know where else is get all of the knowledge about taking care of my dad without you support!!! My dad is still doing well!!! Although he's been...
  6. worrieddaughter77

    Bushfires in Oz

    Dear Tillie, I have logged in here to check on you after the devastating news about the fires. I am so relieved to find out you and your koalas are safe! I can't watch the news without tears... Please be safe and I'm hoping for rain to come soon! Anna
  7. worrieddaughter77

    My dad is still kicking, but recently got the flu.

    Just an update, my dad has recovered after taking a course of antibiotics. He's back to his normal self again and I hope we have many more months/years ahead of us!
  8. worrieddaughter77

    My dad is still kicking, but recently got the flu.

    Thank you Kim, Karen, and Nikki for your responses! WE]e are trying to figure out the combination of local medications and doses for reflux with my dad's doctor. It is frustrating at times, as they usually prescribe half of the dozes that are considered normal in the US, because they prefer...
  9. worrieddaughter77

    My dad is still kicking, but recently got the flu.

    Aww Nikki, so nice to hear from you! I how you are doing ok too! Well he has this terrible reflux, so he refuses to get into his chair as he wants to stay in the only position that he finds comfortable, which is half reclined in his bed. He got his tailbone hurting a lot, but he still prefers...
  10. worrieddaughter77

    My dad is still kicking, but recently got the flu.

    Hello, Sorry I've been away from the forum for a long time. Two teenagers, one baby, and full time care of my dad (shared with my mom) was tough.. And then... We decided to move from the USA to Finland. It was my husband's idea actually... He dragged us in June 2018 because he thought we could...
  11. worrieddaughter77

    Have you heard about this research and info on trials?

    I know there are many of you on this forum who are quite knowledgeable about the current research on ALS. Is this something you have already discussed? How promising is it, and has any of you enrolled in the trials...
  12. worrieddaughter77

    beginning of respiratory failure?

    My dad's insurance also rejected to cover radicava for him, since his respiratory numbers are below the recommendation. I don't know what to do about this... I'd really appreciate if some of you could advise me on this. My husband and i talked that we could probably afford to buy it without...
  13. worrieddaughter77

    beginning of respiratory failure?

    Hello everyone. Thank you for the nice messages. I wasn't much on the forum lately because everything seemed too much. I'd like to update you all with everything that happened in the meantime. I hope I'll be able to do that as my little toddler is asleep. She turned 1 recently and giving us...
  14. worrieddaughter77

    beginning of respiratory failure?

    things have been very busy with the holidays. Lots of family from my husband's side came over for the holidays. it has been very busy with the baby, my dad and the visitors. On top of that i somehow managed to finish teaching my class, graded all of the 200 students, and we even had a very...
  15. worrieddaughter77

    beginning of respiratory failure?

    I can't handle it... My dad has been coughing for about 2 weeks now. He starts at about 7pm and it continues on until about 2am. It's so difficult for him and the rest of us to sleep. And I just don't know what to do!!! It seems that the reason for his cough is a partial collapse of his left...
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