Recent content by worried2014

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    Quick Question

    Hello, I was a very concerned member last year, but through guidance on here and from my neuro and EMG which came back clear, I stopped visiting the site. However, symptoms have continued and are getting gradually worse, with no diagnosis as of yet despite numerous blood tests, brain MRI and...
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    Previous Thread Closed, quick weakness question..

    I have today had my EMG. My left thumb, right calf and thigh, right bicep and face ( 2 places checked ). All clear apart from fasics! I did mention my left calf as that was the (seemingly) most affected area, but the Dr advised that he didn't need to check it as he had seen enough evidence from...
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    Previous Thread Closed, quick weakness question..

    Thank you for your reply Janbrit. My test is being done at Medway Hospital, the neuro centre is a tertiary of Kings and the neurophysiologist conducting the test is based in Kings. I expect the results will be sent directly to the general neuro @ medway or the neuro muscular centre at Kings...
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    Previous Thread Closed, quick weakness question..

    Or even Wednesday!
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    Previous Thread Closed, quick weakness question..

    Thanks for your reply Nikki. I will wait and see what the appointment brings next Thursday.
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    Previous Thread Closed, quick weakness question..

    Many thanks for your replies. Yes affected, I am feeling more positive than previously as I have been kind of waiting for my first "failure" but it has not occurred as yet, and as my first symptoms occurred in mid autumn I am taking this as a good sign! Appreciate the advice Nikki and Dusty, I...
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    Previous Thread Closed, quick weakness question..

    Hi, my previous thread ended up rambling on so I am glad it has closed. I have not been on this site for a while as I was taking some of the members advice, and my EMG is due on 8/4 so hopefully most of my concerns will be addressed then. However, my quick question for the day is regarding limb...
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    Hi, I am a fellow person undergoing testing for what could be one of many things, and I saw your...

    Hi, I am a fellow person undergoing testing for what could be one of many things, and I saw your post and wanted to reply but people who aren't diagnosed / CALS are not really allowed to comment on other peoples threads, so I thought it best to contact you directly! Only point I wanted to make...
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    Scared of ALS symptoms, awaiting a neuro appointment

    Hello, I`ve tried to avoid this website whilst awaiting my EMG appointment, but so far I haven't even received a date. I don't want to discuss my (perceived) progressing symptoms in anyway, but I have a couple of questions: Can bulbar onset present with minor body wide symptoms, ( twitching...
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    Scared of ALS symptoms, awaiting a neuro appointment

    Thanks for the helpful advice Panos, I certainly learned during my first neuro appointment that it is easy to get a little overwhelmed and forget to ask/clarify certain questions/points, a mistake I wont make again. I have read your previous posts and I understand your anxiety completely, I...
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    Scared of ALS symptoms, awaiting a neuro appointment

    Thank you for taking the time to post Panos, especially since English is not your first language! The translation was great by the way! 1) Physiological exam was poor. Conducted minimal upper limb strength tests, zero lower limb strength test. Checked face of hands but not reverse, didn't check...
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    Scared of ALS symptoms, awaiting a neuro appointment

    I saw the neuro today, MRI results came back clear. Neuro undertook physical exam, found brisk reflexes and some fasics, but confirmed no clinical weakness. Has referred me for an EMG, should be within a few weeks, but he does not think that the results will indicate MND, which is obviously very...
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    Yes its my first visit. Had some more blood tests today following the abnormal ones from 2 weeks...

    Yes its my first visit. Had some more blood tests today following the abnormal ones from 2 weeks ago, GP has advised that the results will be with the neuro for my visit next Thursday. Not sure what to expect really, I was under the impression that if anything neuromuscular was suspected the...
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    I agree, its horrible even considering the possibility of having such an awful disease. Although...

    I agree, its horrible even considering the possibility of having such an awful disease. Although considering it is clearly a hell of a lot better than having it!! Your right, despite continually telling myself how likely it is that I have something other than IT, I cant seem to get it out of my...
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    Scared of ALS symptoms, awaiting a neuro appointment

    Many thanks for your message Limeguy, I appreciate you taking the time to write such a lengthy response. My symptoms seem to be quite varied and don't seem to match any one thing in particular, accordingly to my numerous, unhealthy, internet searches. Some of the symptoms have gone, whilst...
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