Recent content by Wonderingaboutthis

Tillie how do I delete my account?

Hi Janie, Thanks for your response and I'm sorry to hear of your challenges. I'm 24 and am being told it's rare in my age group so that's of coure reassuring. In terms of the "going down the wrong pipe thing" it's only happened a total of three times that I can actually remember and this was...

I'd just like advice on gagging. This thread is sort of being turned in another direction. thx

Thank you VERY much AS! I am sorry for your loss. I would like strongly to agree with you, I mean that certainly is the HOPE right? That doctors wont jsut dismiss concerns for fun! As someone who's partner was not only a doctor, but as someone who's had first hand experience with this disease I...

GAGGING was mentioned with bulbar so I'm particularlily interested in hearing what they have to say on it...

That's an interesting perspective and I like that you replied but I'm more interested in hearing what someone who knows more about ALS especially bulbar and or has it, says. Just for some insight.

Hello to all, I first want to start my message by saying I am extremely understanding of the patience you all have with this forum. I can only imagine how many of these "types" of requests you've been getting due to all the heavy media coverage on ALS/the ice bucket challenge. I just want to...