Recent content by Wondering Runner

My pea-brain has worked overtime to find cause and effect to both pain and spasms and fasciculations. Fatigue, in my case, seems to be the precursor to spasms but not always. Spasticity is a serious issue here and when I move about much using a specific muscle area (wasted or not) cramping...

MT., I feel for your situation and the emotional roller coaster you're riding. In spite of my having tried to bone up on the navigation before joining I still find it difficult or impossible to find certain topics and threads that some grouse at others to read. Perhaps my web-browser interface...

Having a placard at hand can make a tough day easier now and then. There is a lot of variety in size and local. I wouldn't mind having preprinted cards with a humorous phrase or two to put on a windshield now and then... but it's hard to "see" disabilities sometimes and I'd hate to find out my...

From cancer.org (surely, this applies to ALS)... Does a positive attitude affect cancer? "People with cancer and their families may feel guilty about their emotional responses to the illness. They may feel pressure to keep a “good attitude” at all times, which is unrealistic. This feeling of...

Elle, I hear you. A person't attitude is far too complex to label as positive or negative in black and white terms. It gets me thinking on how some say "don't sweat the small stuff". At first glance that appears to be sound advice. But what is small to me may not be an insignificant thing to...

Hey Pete, apologies for not responding until now. I spent a month in France at friend's with the intent to unplug. An athlete section might be cool. I regressed to an indoor spin machine for a day. but nothing beyond stretching is within my capabilities. I simultaneously grieved the loss of joy...

To thine own self be true. Be who and how you want for the right reason for you, whatever they may be. I'll look for an article on this very topic in the NYtimes last year... studies show the ill-effects on health of trying to maintain a positive attitude. I am bound to be short with others...

Heh heh. It is me and it feels like a lifetime ago though it wasn't. I had my last healthy lengthy run just over three years ago and sold all but one bike at the same time. Tripping and clonus do not an athlete make. Running a marathon is mind over matter and the photo keeps me thinking that the...

I hesitate to give any medication advice because only you know what your physician has suggested. Your pharmacist can be the easiest pro to ask about the drug's recommended dosages, frequencies and overall use if you don't have a quick response from your Dr. With any drug I do recommend that...

Great advice from all. Certainly not quite a black and white solution on offer, but now you know a bit more about where you are at. Or where you were at for the moment. We are all likely learning how elusive it is to maintain an accurate gauge of the day’s emotional and physical abilities no...

Posted a response on m own wall.Doh! Opthamologist was great but did not much new beyond supporting my taping lids shut at night. Some patients cut cling film and put it over eyelids to keep them from drying out. FLoppy eyelid syndrome. For real. Add it to the list. My eye does not stay...

Canes sometimes gave me a false sense of security. Nope, not good once overall strength and balance decliine. Last winter I fell hard on my face and tore my earlobe just by taking a step out of a taxi in London. Horrifyingly embarassing and scared the driver and a friend even more than myself. I...

Ugh. Awful. Sadly, it happens. I have the alert system but forget to keep the button on my wrist. Watching the world go on around us sucks when we're hurting. How do you feel physically tonight? Falls rattle me good. Even the near falls can scare intensely. I m o v e m u c h slower...

Of course you're not ready for this bologna. I got wound up over a NYtimes article last month on new rules at a nursing home which banned residents from taking their walker to get their own food. They had to sit and be served. Too lengthy and complex of an issue with many good arguments for and...

Excellent and admirable endeavour. I hope you glean some useful info from us PALS and CALS. Try one yourself too, of course. As a design manager for twenty some years, a passion for Universal Design principles (MA in DM for Universal Design), and a keen interest in supporting someone to develop...