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  • Hi wisemonkey. How are you? I read your post and have similar symptoms. Do you also have cramps, swallowing issues and slurred speech? Have you been tested for Myasthenia gravis, MS and viral conditions via spinal tap?
    In Europe we have a blood test NFL that can sometimes be used to just check for yourself if it is ALS though has not been confirmed for a diagnosis yet.
    Best wishes
    Kiki
    Kiki123
    Kiki123
    Hi Lesley, at least the emg didn't show anything. Did they mention another cause for the atrophy or only ALS? It's good news that the lung test war fine. Are you seen again? I know the long wait is emotionally hard but I hope that it's enough time to find out what Is wrong.
    Kind regards,
    Kiki
    W
    Wisemonkey56
    Hi, I still believe I have mnd/als, I've got jaw jerks, esophageal spasms, awful throat mucus (no infection), constant nose blowing after eating, drinking, or moving too much and hyper metabolism so I'm slowly loosing weight, I have to eat twice the amount of food, to maintain weight. The hip is a real issue. Follow up tomorrow.
    Kind regards,
    Lesley
    Kiki123
    Kiki123
    Hey Lesley,
    Any news?? I tried an alternative doc to check blood and gut now.
    Still not diagnosed.
    Best wishes Kiki
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