I also am on the Deanna Protocol. Would you be so kind to send me the regime that your partner is following that has resulted in the stabilization of his ALS. I also don't think my PM is working. My email is [email protected]
Thank you so much for the great dinner and discussion. I enjoyed meeting you both. It was so nice to speak to someone who knows the struggles we face daily. Hope you have a great time on your cruise and have a Merry Christmas. Keep in touch and love to both of you on your journey.
That sounds like fun. My Mom said she would take me on a cruise to Hawaii. I'm bulbar so expecting rapid progression
Are cruise lines handicap/wheelchair friendly? We are trying to do as much as we can while I am still mobile. My rt arm & legs get so sore if I do too much. Weak but no atrophy yet. Only atrophy is in my tongue, sure my rt arm will be the next to go.
Hope you guys have a fantastic time. My husband & I would love to meet you two.
OK....don't let me forget!!! We are going to the Southern Carribbean including the Panama Canal. Jim loves to cruise (this is our 9th) and it is the easiest form of travel for him. The only pressure is the Air flights. (The Alaska cruises are wonderful!)
That sounds like a plan. Where are you going on your cruise? My family (12 of us) are going to Disney World December 20-27. Also looking at a trip to south Texas in the spring & Alaska cruise in May. Will be great to meet you & your partner.