Recent content by Whispa

Hi rhibs, I’m not sure how much help I can be but I will try. I was recently the carer of my own mother who passed from ALS, although we didn’t get a definite diagnosis until 10 days before she passed. A mix of covid, closed minded doctors and my mums weight, symptoms and stubbornness had them...

Hi Henry. 2 months ago my mother passed away from what doctors could only call a “very rare variant” of MND. There’s still an element of doubt as to whether it was it, as 1 week prior to death she was still living independently, walking, talking, showering herself, eating, just that everything...

Thank you for the replies. I’m fairly sure an EMG was conducted at the same time as the nerve study (little electric pads taped to various places??) we never actually got the results as the tech panicked and took them straight next door to her dr at the time, but when I ran into her dr the other...

Hi all. I lost my mum a few days ago, and right til the end doctors were hesitant to actually call it MND, just that it was equally devastating. Noticable symptoms started approx 18 months ago, but may have been earlier but subtle. She had weakness and loss of balance in legs, worse on the...

Hi, thank you for your response. We don’t unfortunately have her EMG results, the tech sent them straight to her doctor and mum didnt get a copy at this stage. The steroids are because, at one stage they suspected maybe she has statin myopathy, so commenced steroids. Tests have not backed that...

Hi all, I’m writing here regarding my mum, and only out of helplessness as the wait times for neurologist here are terrible. About 12 months ago my mum started having occasional slow speech, as well as loss of balance and some all over weakness. It became more noticeable and she’s now at a...