Recent content by wheeler641

  1. W

    need info on pls

    thanks max, I have seen a neurologist at u of I in Illinois, and passed the strength tests, did not suggest a emg, have been having problems since 2008 when I joined, but a lot new stuff happened this year. I know pls is hard to diagnose, just looking for some input, thanks margaret
  2. W

    need info on pls

    I have been a member for awhile, I have not posted in a very long time, I will try to make this as short as possible. I know I do not have als, I would be dead by now. Last year in june my daughter found me unresponsive and brought me to the er, I was diagnosed with aspiration pneumonia. I was...
  3. W

    I'm a little confused

    wish I could help, but I do not have clue, even after reading the article, maybe Wright will chime in, or you could p.m him, I am sure he would not mind, margaret
  4. W

    CK levels

    paul, once you mentioned cipro, I saw a red flag, I had a terrible reaction to tequin, same family, now taken off the market and levaquin, darned near killed, I believe all this is a residual reaction to cipro. While you are on it it is very easy to pull ligaments and muscles and you are one of...
  5. W

    Force Doctor or wait and see?

    nighthawk, I think you read the post wrong, she stated if anything WAS FOUND on the mri, she would cancel the emgMargaret
  6. W

    Does this sounds like a NeuroMuscular problem?

    I have lupus and also aps (hughes syndrome, I had a positive ana and a sed rate of 95 before it was confirmed. Your symptoms sound somewhat like mine, during a lupus flare, it took almost 2 years to get a firm diagnosis. have you seen a rheumatologist? chances are if you have one anti-immune...
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    Time to Ask the PLS crowd again

    patty, you are one of the nicest and informative person on the board, you always address all the newbies concerns with a great amount of empathy and understanding, I would just hit the ignore button on this person and continue to be the caring person you are. I have to admit seeing that post...
  8. W

    Time to Ask the PLS crowd again

    was going to p.m you, but could not figure out how to do it. i have a bunch of the same issues as you< spinal stenosis< spasticity< high blood pressure< going to make this short do not take the lyrica . gabatian and lyrica are the same thing, lyrica is just more concentrated. Took lyrica for a...
  9. W

    no way to walk it off

    this is just my opinion, i live in indiana and i am familiar with the medicaid rules here and in illinois. I would take myself to the emergency room of a hospital,do not tell them you are homeless, they might just dismiss you as a crazy. Lie a little bit, exaggerate your symptoms, tell them you...
  10. W

    explanations and a question

    i do not have als, but i have spinal stenosis, so my walker is my best friend, i go to thrift stores often and i noticed that at most times, they have up to 5 walkers for about 5 bucks apiece, they also have quad canes, i go to goodwill most of the time, i sell on ebay, so i hit them all looking...
  11. W

    Please help - equipment welcome

    how is the nursing home being paid for, does he have medicaid, if not and you are really as as broke as you say you are, you need to apply. Also you might want to consider hospice as they will come to your home to help out, my dad had them when he was dying of colon cancer, they supplied the...
  12. W

    Ready to Explode! (disability coverage issues)

    Re: Ready to Explode! I thought long and hard as to if i should reply to your post, i mentioned this on another one of your threads, not sure if it was overlooked or not. Please, please loose the Klonipin, it almost put me in a psych ward after taking for a month. I did not notice the changes...
  13. W

    Lips

    i have been a member for quite a while, i came here with concerns about als and was greeted by a bunch of great caring people, bethu, al, rose, cj, glenn among others, never was a belittled or made fun of. I do not have als, i still read the forum as i find some of the tips to be helpful in...
  14. W

    Advice needed

    i also have spinal stenosis, had 2 injections, first did not do anything, second actually made it worse, wanted to give me a third, which i guess is the max. she wanted to go in from a different angle, however i guess it is worth a shot, the injection it self was painless and was done in the...
  15. W

    Feeling like a misfit

    hi becca, i do not post much as i am undiagnosed and playing the waiting game. My first husband was killed in a car accident at the age of 32, i also had 2 small children ages 3 and 6. I was devastated, everyobe we hung out with was couples, which were sympathetic at first, them slowly slipped...
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