Recent content by westjlittle

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    Respironics battery pack

    This item is no longer for sale.
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    Respironics battery pack

    Apparently the website link I had in my posting didn't make it past the review board. In my original posting I provided a link to a detailed description of what I bought. If you want that information, please send me message. jim
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    Respironics battery pack

    I had purchased a battery pack with 12V auto cable for my bipap. I recently went on a vent. I no longer need the battery pack. It is for the Respironics brand. I used it with a Synchrony . It is compatable with the following machines : * M Series DS100 CPAP Machine * M Series Plus with...
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    Pee problems and ALS

    I went through a similar urinary urgency phase. My neurologist asserted that it wasn't related to ALS and referred me to primary care. We ruled out an infection then she made me drink more liquids. Oddly enough more liquids eliminated problem. One cause could be that you are dehydrated and...
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    Act now for health care reform

    (sorry for the intrusion my canadian PALS) As Washington debates health care reform, I urge you to contact your house representative and senators. We need to spread the word about our medical needs (tragedies) and influence the debate. Below, I have included a copy of an email I sent. Please...
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    Trache questions for Joel or anybody ...

    joelc, Lets say you want a planned trach. What things do you need to have 'in-place' prior to operation? jim
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    tracheotomy and laryngeal diversion

    I think the question boils down to "Can you avoid pneumonia better with operation?" or maybe " What % of pneumonia cases are due to mouth bacteria/aspiration? Jim
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    Roll in shower-cost-funding

    I feel for all of my fellow PALS in the remodel pinch. I have good news if you live in Colorado. The CO home builders group has a foundation that pays for and does renovations. see http://www.hbadenver.com/foundation/ They got started with the columbine school victims and never stopped...
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    tracheotomy and laryngeal diversion

    I am getting close to needing a vent. I have read several good threads on vent/not vent but no one has mentioned laryngeal diversion. I ran across this article from MDA:It discusses laryngeal diversion. http://www.als-mda.org/publications/als/als13_5.html#aspiration I was wondering if...
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    ? on speaking devices

    Yes , it is that simple. I use my work laptop with Etriloquist at work and my dynavox at home. Just google etriloquist. it will come rightup jim
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    ALS Event and News

    I got a news story done on me concerning my promotion of an Augie's Quest - MDA Gift of Time event. It aired during the prime time 10PM broadcast. (Denver) See story and video: http://www.9news.com/news/local/article.aspx?storyid=109224&catid=222 Jim
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    Anyone have any experience with getting grants for handicap adaptation?

    If you live in Colorado, the Home builders foundation will help adapt house. They remodeled my bath and put in a ramp. http://www.hbadenver.com/foundation/ Jim
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    MND and being single-part II

    My first reaction is that you need to be planning for the different stages. An Occupational Therapist may help you in the near term. I have dealt with loss of hand strength by eliminating zippers and replacing with velcro on clothes, foam pad on my razor for shaving plus other things. At...
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    Zoloft for emotional lability -- side effects?

    I use it for lability. I would cry watching the news or laugh too much when my kids misbehave. Jim
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    Zoloft for emotional lability -- side effects?

    I use Zoloft and I find that it works great for me. I was taking Amitriptyline but it raised my Blood pressure and heart rate. Jim
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