Apparently the website link I had in my posting didn't make it past the review board. In my original posting I provided a link to a detailed description of what I bought. If you want that information, please send me message.
jim
I had purchased a battery pack with 12V auto cable for my bipap. I recently went on a vent. I no longer need the battery pack. It is for the Respironics brand. I used it with a Synchrony .
It is compatable with the following machines :
* M Series DS100 CPAP Machine
* M Series Plus with...
I went through a similar urinary urgency phase. My neurologist asserted that it wasn't related to ALS and referred me to primary care. We ruled out an infection then she made me drink more liquids. Oddly enough more liquids eliminated problem.
One cause could be that you are dehydrated and...
(sorry for the intrusion my canadian PALS)
As Washington debates health care reform, I urge you to contact your house representative and senators. We need to spread the word about our medical needs (tragedies) and influence the debate. Below, I have included a copy of an email I sent. Please...
I think the question boils down to "Can you avoid pneumonia better with operation?" or maybe " What % of pneumonia cases are due to mouth bacteria/aspiration?
Jim
I feel for all of my fellow PALS in the remodel pinch.
I have good news if you live in Colorado. The CO home builders group has a foundation that pays for and does renovations. see http://www.hbadenver.com/foundation/
They got started with the columbine school victims and never stopped...
I am getting close to needing a vent. I have read several good threads on vent/not vent but no one has mentioned laryngeal diversion.
I ran across this article from MDA:It discusses laryngeal diversion.
http://www.als-mda.org/publications/als/als13_5.html#aspiration
I was wondering if...
I got a news story done on me concerning my promotion of an Augie's Quest - MDA Gift of Time event. It aired during the prime time 10PM broadcast. (Denver)
See story and video:
http://www.9news.com/news/local/article.aspx?storyid=109224&catid=222
Jim
If you live in Colorado, the Home builders foundation will help adapt house.
They remodeled my bath and put in a ramp.
http://www.hbadenver.com/foundation/
Jim
My first reaction is that you need to be planning for the different stages.
An Occupational Therapist may help you in the near term. I have dealt with loss of hand strength by eliminating zippers and replacing with velcro on clothes, foam pad on my razor for shaving plus other things. At...