Recent content by wendyj

Hi I am having trouble with adult diapers. Is there any comfortable ones out there? Also can you buy a regular foam mattress to use on a hospital bed. I have been in bed a few months and am starting with bed sores . I would appreciate any help.

Thank you all for taking the time to answer me. I had a great time on the cruise but it also highlighted all that I couldn't do. I tried not to show it for my daughters were having fun. I watched my mother die of ALS. I have almost the same starting symtoms. I try so hard to find something to be...

I have ALS. I can easily say that, what I can't understand is how am I going to deal with the rest of my life. I am scared and resent that I can't do for myself. How do I get to the point of excepting my limitations. I am losing my ability to walk with a walker. I can't hold anything and walk. I...

Thank you James. It's been a rough year. I went to breaking a foot to ALS. Although I had been limping on and off for six months before the foot,so I kinda knew.

Hi zoohouse, No I haven't dealt with anything.We are all going on a cruise in jan. so I will decide after. I don't want hurt feelings to mar the trip. But,nothing has changed. She has never left home but has worked till she hurt her back. I don't know what the answer is. I take it day by day...

Thank you all I am so confused. I will Talk to someone before My next vist to the clinic. I just want to live as stress free as possible. I feel like I'm a whiner, but you have made me feel better. thank you.

NikkiJ Yes I go to UMass. It is a ALS Clinic and I am very surprised at the lack of treatment I have received. I am glad though that it's not my imagination that something is wrong.I am going back in Jan. and I will be more questioning about my care. I am so not impressed by the care so far...

I am seeing one Dr. and sometimes his resident. Last time he had another neuro with him, but that is it.

Thank you for your replies. I think part of me resents that here I get that terrible news and no one is taking care of me. I am so frustrated all around. I thought at least at the doctors I would be taken care of. But I don't feel that I am. I have seen my doctor at the clinic 3 times and It is...

Hi. I was diagnosed with ALS on Oct.8. I have had two visits at an ALS clinic. I only get the hammers to the legs and the press down as hard as you can. I also was told anything I needed they would help me. Now I have been reading I have not had any of the breathing test or whatever else they...

Thank you all I guess I have some thinking to do

I am having trouble with my daughter,my care taker. I have ALS, I found out for sure in Oct.I have trouble walking, my right leg is useless. The problem is my daughter has a big heart but I don't think she can handle the battle we face. My other daughter wants to take me in, but I don't want to...

Thank you for sharing. I have been feeling the same thing.I won't buy new clothes or shoes because I don't know how long i have. I try not to dwell but It's so hard. But as Texastacy said we have to keep a stiff upper lip for our family. I watched my mother suffer though ALS and she hid alot...

Thank You all. I am new to this and I am trying to keep myself comfortable.

Thanks I'll try the gel pillow.