I'm in the same boat as you ... just trying to wait patiently I have an appointment in Houston at the end of July to do a multi-day evaluation. Guess I just have to sit tight till then. Will you report back on how your muscle biopsy goes? I have a feeling one of those is in my imminent future.
Suzannah,
Not yet. I have a muscle biopsy in 2 weeks. Then an appointment with my neuro once the results come back. So just trying to wait patiently until then.
Thanks for asking. How are you doing?