Recent content by Walter

Don't know if this will help. I was afraid to use out treadmill because when using it I would drag my foot every few minutes and trip over it. My brother found a beam in the ceiling, got up in the attic, drilled a hole and put a long eye bolt through it. The we took one of those foam "swimming...

The GENEVA Study TxRR "Genes and Environmental Exposures in Veterans with Amyotrophic Lateral Sclerosis: The GENEVA Study" is a pdf file where I got the information about how the study classified veterans. Here is the link. Just hope it works...

Dr. Peake I was thinking about “the letter of the law” and Cindy’s quote “the fact of the matter is the VA does not have to grant presumptive service connection unless the disease is stated explicitly in the CFR which PLS isn't.” Well, if the directive didn’t explicitly state PLS then changing...

VA Interpretation I did include the quotes as an attachment to my letter. I noticed some of the links to the original source are not working but you can still get an idea where they came from. ZenArcher, I fear you may be right about the VA following the regulations to the letter. That's why I...

ALSA of GA Billy, When you get the information, please share. Here's what I have but like you said "you never know with the VA." Primary Lateral Sclerosis: A Variant, Subgroup, Subdivision and/or a Continuum of...

Letters Cindy, you are so right. A few letters might get someone's attention. I hope some of the veterans with PLS write the secretary or anyone that they think has any influence. TxRR made a very good point with his statement..."PLS may not be life threatening but it is debilitating and that's...

Secretary of Veterans Affairs PLS is such a rare disease. There are only a few number of individuals afflicted with PLS and even smaller small number of veterans. Possibly because we are small in number and don’t have large organizations, famous or prominent people like military generals...

PLS - Left Out I found this on the FAQ’s: New Veteran’s Administration Policy for ALS page of the ALS Assoc. web site Dated Oct 1, 2008. 13. I have been diagnosed as having Primary Lateral Sclerosis (PLS). Will I automatically qualify for VA benefits under the new policy for ALS? No...

The Geneva Study - PLS Just general information. I download a PDF article called "Genes and Environmental Exposures in Veterans with Amyotrophic Lateral Sclerosis: The GENEVA Study" It stated there were 2089 enrolled in the study. 127 (6.1%) had PLS. It also stated how the individuals in the...

PLS - Vets I am not surprised that even medically minded people don't know about PLS. I worked as an Registered Nurse for 30 years and never heard of the disorder until I got it. I am afraid PLS will be left out of the VA's presumptive illness list. There are so few of us. I just sent an...

PLS Vets Thought I might add......PLS is thought by some to be a variant of ALS. I don't know how the VA is going to rule on vets with PLS. "It is often referred to as a benign variant of Amyotrophic Lateral Sclerosis." - Spastic Paraplegia Foundation's web site. "It is the rarest of all...

PLS - Veterans Today I received an e-mail from the ALS Association- Advocacy Department that stated. "September 23, the Veterans Administration will publish regulations officially establishing ALS as a service connected disease!" It doesn't matter how long after discharge a person develops...

Judith, I have PLS and the MDA told me the same thing.

neuroexam.com Great site. Thanks I was able to see the videos. When you select the video you want to see it takes you to a text page. On that page, you will see the title you selected above an image. Below the image you will see in red text "LOW SPEED" and "HIGH SPEED". Click on one of them...

Just received the March/April news letter from "The Hereditary Spastic Paraplegia Foundation" stating that California Congressman Joe Baca has introduced legislation to create increased awareness of PLS. If passed, each February will be the "Hardy Brown PLS Awareness Month". The Hereditary...