Recent content by Walt46

  1. Walt46

    10 month twitch anniversary but concerned

    Hi Laurie, Thank you, I will look to do that. My diet isn’t great to be fair and sleep is terrible, but when I do have that odd night of a good sleep, it doesn’t seem to have any positive affect on me. Do you think I should have another EMG with the weakness in my toe still being present...
  2. Walt46

    10 month twitch anniversary but concerned

    One huge thing to add - 2 months ago I had big toe drop - not perceived but was like touching my ear lobe, no power or control of it, just hung down and I thought that was a big bad sign. Horrible weekend waiting to see GP but it came back around 60% on the Monday, then strengthened is now...
  3. Walt46

    10 month twitch anniversary but concerned

    Hello, I’m a 10 month twitcher and I find myself back here. - 6 month, 24/7 bicep twitch with no other symptoms. - After 6 months it spread to my right leg and no longer in arm. - 8 months to 10 months I’ve had 24/7 body wide visible twitching. I’ve had a couple of 1 week thumper twitches...
  4. Walt46

    Another twitcher

    I was just updating with my EMG results as I was asked to post when received. As for a troll, I couldn’t be further away from one and find that response quite upsetting when I’m am genuinely worried.
  5. Walt46

    Another twitcher

    Hi all. Hope everyone is doing as well as can be. Glad to see the UK government has released 50 million to help fight this disease, and I’m sure it’s down the contributions and awareness that many of you have made - all legends. I have attached the EMG that I have finally got my hands on...
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    F73AA409-D97F-4A9A-B90D-AA38E30B17BB.png

  7. 37B0670D-36C7-4055-8E1B-AB9BEB87286B.jpeg

    37B0670D-36C7-4055-8E1B-AB9BEB87286B.jpeg

  8. Walt46

    Another twitcher

    Agreed. Just the one EMG and no paper work yet until the 16/12. Will post then. I’m a member of Bfs/ms/anxiety groups and my symptoms don’t fit with others so I feel like they fit more with others in the ‘ is this ALS’ based on historic posts on here. I’ll update only when I have clinical...
  9. Walt46

    Another twitcher

    Thank you for you responses. I’ve booked to see a doctor again as I think an MRI is worth doing. I now have twitching on other side of body in my arm hands and legs which is frequent, but not 24/7 like my right side, yet. To summarise, I’m 3 months of 24/7 local twitching in right arm ( 1st...
  10. Walt46

    Another twitcher

    I’ve done my absolute best to just move on and forget about my arm and leg twitching but I just can’t ignore how things have escalated. Since my clear EMG 2 weeks ago I have felt more relaxed, happy and stopped worrying, but the twitching and spasms in the past week have spread to my chest...
  11. Walt46

    Another twitcher

    I had a call from my neurologist at the hospital this morning saying that an EMG after 3 months of twitching in one limb is not conclusive and would generally like to do another EMG after 6 months. I also see there are some recent posts on here where twitching alone was an initial symptom so...
  12. Walt46

    Another twitcher

    I’ve had my EMG done by a Neurophysiologist who said he can’t see anything that concerns him and I need to see a neurologist. I told him about the comments that were made yesterday, - that the EMG was not conclusive if it was clear, which he agreed to a certain extent but said it was a good...
  13. Walt46

    Another twitcher

    I called my gp just to mention it has spread to my right leg now as they said report any changes. They rang neurology at the hospital and said they wanted to see me. Said they didn’t want to scan my head as the constant twitching which is non stop in arm and leg rules out a few things for them...
  14. Walt46

    Another twitcher

    So here I am in hospital despite having and EMG booked for tomorrow due to twitching in my rights leg which is a new symptom. They advised the the EMG tomorrow will not rule out ALS as it is too early to confirm after just 3 months of twitching but would be a good indicator. I asked if they...
  15. Walt46

    Another twitcher

    Hi all, I seen my GP today and she said she was quite concerned how my symptoms have changed in the last 10 days. She has given me a referral letter to go private. Do I just go and have an EMG done do you think or see a Neurologist first? Should I travel further a forked and try and see one...
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